The Online Community for Parents.
Connecting families living with Variations of Sex Development
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| | Turner's Syndrome | My daughter has xoxy mosaic Turner's Syndrome. You may ask what does this mean? I have been asking myself the same question since she was diagnosed shortly after birth one year ago.
We know that it means she has some physical signs of Turner's Syndrome but everything else about her condition waits to be seen. Will she have short stature?
Will she have learning or socialization difficulties?Will she need hormone therapy?
Will she struggle with gender identity?
Will she be a regular, happy kid?
I have searched for a place I can feel comfortable talking with other parents about these issues. Places like this are few and far between. With ParentsInX we have the opportunity to create a community for parents to share similar experiences and the joys of parenthood. Mamaniq |
| Klinefelter's Syndrome |
Dr. Harry Klinefelter discovered that a group of men with enlarged breast have a commonality; their chromosome makeup is typically xxy. Some experience more symptoms of the xxy condition and some less.
More than 60 years after the initial discovery, parents are talking more about their children and Doctors are more aware of how to treat patients of Klinefelter’s syndrome. Still, more research is needed.
ParentsInX is a site where Parents of Klinefelter’s Syndrome children can discuss the concerns and exchange notes on everything including medications available, schooling, socialisation and many more topics in a comfortable home setting.
Please join us in commemorating Dr. Henry’s discovery as this year the second annual awareness campaign week is from March 16th to the 22nd with various sites participating in the event including sites such as this and those in www.KlinefelterSyndromeAware.com.
Andre |
| How ParentsInX came about. |  Tue May 20, 2008 10:18 pm by Andre | When GendersInX was approximately a year old under the new server, I had started to think about creating a new site just for parents of children with a Congenital Gender Variation. This would include parents who are or their children who are of 5 Alpha Reductase, Congenital Adrenal Hyperplasia, Androgen Insensitivity Syndrome, Klinefelter’s Syndrome and Turner’s Syndrome.
The parents forum wasn’t seeing too much traffic in GIX and I thought that perhaps the cause was that parents would like a little privacy. In writing this concern in GendersInX, a member there who is a mother of a Turner’s Syndrome child spoke up and suggested that a new site just for parents was the way to go. I offered her moderatorship on the site and she accepted. So here I went with a new project to be excited about.
Mamaniq and I decided that the theme of the site should be centered around the home as this is where we raise our young’uns most. I had set this up so that the resource people in GendersInX would also have the same job function in ParentsInX (PIX for short). This way if a parent had any questions, then they would get the information first hand from a person who is of that condition. Mamaniq has good first hand experience in her child’s condition and I am a Klinefelter’s person who is daddy to a daughter (can you tell how proud I am of that ?).
To our great surprise, we had a donation given to us for this project. This gave us a great boost. Although PIX is a free forum, some things paid for are domain names, no ads, memory storage and other features that make our forums wonderfully functional. Well, things are picking up and unlike most sites, it is my feeling that parents do not want to share their story until they are assured that a site is safe and sound. This is something that most parent sites are not assured of.
To date, we have some mothers coming on PIX and we are starting to see more conversations. I look forward to others coming on and voicing their concerns, thoughts and anecdotes. The site is definitely safe and all who enter go through a short screening process in order to be assured that the new poster is not a spammer. We are always open to suggestions, should it be noted that a forum would be apt for a discussion.
www.ParentsInX.org exists to encourage and support all the members with a little fun mixed in.
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| | | Reciprocal links to ParentsInX.org | To link with ParentsInX, please copy the text below to a link on your site in an area that is visible to the public. We would prefer if you would put this link into the Parent or child section of your site. If you would like a reciprocal link, please contact us at Andre@ParentsInX.org .
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